I usually only write about gaming stuff here. Very rarely we
examine something more serious. The other day a story came to my attention (via The Main Man) about a 30 year-old gamer
named Steve Fillmore who has Stage III-B colo-rectal cancer. Not only has this
terrible illness required surgeries and chemo-therapy, but it has taken an
enormous financial toll on him and his fiancé, Lindsay. In fact, they had to
launch a Giveforward campaign to pay down some of his medical debt, to avoid
cancelation of insurance and termination of his treatments. Steve’s story
really struck a chord with me, because of my own struggles with Crohns disease
(a far less serious condition I have talked about here in the past, but one
that occasionally requires similar treatments). Thankfully, I have never run
into a problem with insurance. But I can only imagine what it would be like to
have to deal with the reality of a life-threatening illness while also fending
off the debt it generates. So I thought it might be a good idea for him to talk
about his Giveforward campaign here in a brief interview. I encourage readers
to give what they can. This is a genuinely good cause and you can directly
impact someone in a positive way.
(Steve’s Giveforward campaign can be found here:
GIVEFORWARD CAMPAIGN)
BRENDAN: Thanks for
agreeing to do this interview Steve. How are you feeling and how are you and
Lindsay holding up?
STEVE: Thanks for the willingness to do the interview. I am
feeling good. I had the surgery recently to reconnect my small intestine to my
rectum, so that means that I no longer have an illeostomy bag. Lindsay and I
are doing fairly well. It has been stressful and I know she is tired, she has
been working way more hours than someone should to help make ends meet.
BRENDAN: Can you tell
our readers about your Giveforward campaign and what you are hoping to achieve?
STEVE: The Giveforward campaign was established by some
friends of mine. Gamer friends in fact. I had never actually met them in person
until this past Thanksgiving. Andre and Jennifer Martinez, good people. They
started it to help Lindsay and I have the ability to pay down doctor bills. I
don't know what we are hoping to achieve. Anything, any amount that the site
raises is great. It is all going to pay down debt after this ordeal. Well not
all of it. A part of it I am donating to Rock Solid Foundations. It is a local
organization that builds playgrounds for children with cancer. And that is
something I can get down with.
BRENDAN: For those who
might not understand what it is like to treat a serious illness, can you tell
people why the medical costs became such a burden, even with insurance?
STEVE: Well the hard part of this is that the treatments have
been worse than the disease. So even with insurance paying for a good portion
of my treatments I was not able to work for a large portion of that time. In
fact I almost lost my insurance. Even with the insurance the bills have piled
up. I have been through Radiation, Chemo-therapy twice and have had at this
point I think 6 surgeries. All of which have multiple bills associated with
them and that’s not even counting the doctor visits. So you keep getting more
and more bills and working less and less. Lindsay has been a blessing beyond
belief, when I couldn't work she really stepped up.
BRENDAN: If you lose
your insurance, what options do you have for treatment?
STEVE:None. I was turned down for partial disability, citing
that my condition was not debilitating. I challenge the lady that told me that
to go through a month of my chemo.
BRENDAN: You work two
jobs. Where do you find the strength to remain so active?
STEVE: I find the strength in my family, my friends and
Lindsay. She has been amazing. We had only been engaged for 4 weeks or so when
I found out I had cancer. She didn't have to stay, she had every right to say
that this was not what she had signed on for and run, but she didn't. She has
stood by me, through the sick, the tired, and even the mean.
BRENDAN: I did notice
you are a gamer. Has your relationship with gaming changed during the illness?
Do you find it helpful to game?
STEVE: I haven't gamed in a long time in person. It has all
been through Google Hangouts, so that part has changed. I have always had a
love for the hobby, my dad is a gamer. But I have really come to learn that
there are some incredible people out there. You hear the hobby being talked
poorly about all the time, but I would again issue a challenge to people to see
what these folks have done for me, how they have rallied behind me, come to be
my friends, to love me and be loved by me. How many of you can say that about
your hobby?
BRENDAN: What has the
hardest part of all this been?
STEVE: The hardest part? 1) My dad telling me that he felt
guilty about it because it was his job to protect me and he couldn't. 2)Seeing
my mom hurt by it. 3) Perhaps the worse. The shear amount of anger I have taken
out on people like Lindsay when they did not deserve it. I came really close to
losing myself. Not physically, not talking about dying, but mentally. I was not
who I wanted to be any more.
BRENDAN: What would you like people to know about
cancer? Is there anything you’ve learned that you want to share?
STEVE: Its real folks! Sit there and say not me all you want,
but yes even you. Please Please Please, men, get checked. I was 29 when this
started, this is an old man's disease and I was 29. The other thing I will
share, is be patient. It has been said before but I will say it here. You do
not know what the person next to you is going through. Please be patient and
try and share a kind word.
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